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When you receive a serious diagnosis, you may feel like you have an impossible decision to make. Do I seek treatment and deal with the symptoms that will make me miserable, or do I choose to leave this life and my loved ones with dignity through hospice care?
Thankfully, there is another choice – a missing link in health care that can improve your quality of life while you seek treatment.
Palliative care is a unique type of support that focuses on quality of life and aims to ease the symptoms, discomforts and stresses associated with serious or chronic illness while you seek a cure.
You can receive palliative care if you have Alzheimer’s disease, dementia, heart disease, renal or liver failure, cancer, Parkinson’s disease, kidney disease, lung disease or COPD, HIV/AIDS, multiple sclerosis or many other life-limiting conditions, including a stroke.
Palliative care is an underutilized service. It sounds complicated because ‘palliative’ is not a common word. “To palliate” means to make a disease or its symptoms less severe or unpleasant without removing the cause.
Oftentimes, diseases cannot be cured overnight, so palliative care can be the link between treatment and enjoying each day in your own home.
Palliative care can be initiated when you are diagnosed with a serious and chronic illness and begin to experience pain or symptoms related to your disease.
Treatment may lengthen your life but can often worsen or even cause undesirable symptoms such as fatigue, shortness of breath, nausea, vomiting and pain. Palliative care focuses on increasing your quality of life by relieving those symptoms while you continue to seek treatment.
You do not need to be in hospice to qualify for palliative care. Hospice care focuses on a person’s final months of life, but palliative care is available at any time during a serious illness regardless of prognosis. Some people receive palliative care for many years.
In-home and community-based palliative care involves an advanced registered nurse practitioner (ARNP) and social worker who meet with you and your family in your home where you are most comfortable.
Meeting in your home not only alleviates the burden of having to travel for an appointment but allows the practitioner to treat you holistically in a way that is realistic for you and your situation.
If needed, they can meet with you in a hospital, an assisted living facility, a long-term care facility, oncology clinics or outpatient offices.
Your doctors remain fully involved while you receive palliative care. Together with your health care providers, palliative care providers work with you to develop a care plan that is right for you and your family.
Your palliative care team includes a medical director, ARNPs, social workers and volunteers, and if needed bath aides and spiritual counselors.
When you are seriously ill, each person in your family is affected differently. Palliative care is an important source of support for families, often easing the stress on caregivers.
Your palliative care team can:
Medicare, Medicaid, private insurance, veteran’s benefits and donations cover the cost of palliative care.
If you care for someone who could benefit from palliative care, talk to them about it today because life is for living.
Shelby Moore is executive director at Heartlinks, which provides hospice, palliative and grief care services for Benton and Yakima counties.